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Megan Donnell

Class Year: 2022

Scholarship: Social Change Fellowship

Connect: LinkedIn Profile

State: NSW

Position: CEO, Childhood Dementia Initiative

Focus Area

Positive social change

Megan Donnell

Class Year: 2022

Scholarship: Social Change Fellowship

Connect: LinkedIn Profile

State: NSW

Position: CEO, Childhood Dementia Initiative

Focus Area

Positive social change

Biography

Right now, thousands of Australian children are suffering and dying slowly with dementia, without access to the therapies and care they need, and most people are not aware that it exists. I am changing the discourse around childhood dementia by bringing the 70+ genetic conditions together under an umbrella of their common definition. This will drive systemic change for better care and quality of life for children with dementia and their families. Using a consumer centric and evidence based approach, I am bringing the voices of families whose children are suffering with dementia to the forefront, to build awareness, accelerate the development of therapies and shift national healthcare and social care programs.

 

My goal is for children with dementia to have equitable access to excellent healthcare, social care and therapies so that they may live long and fulfilling lives. I am inspired by my children, Isla and Jude, who both suffer from terminal childhood dementia. I have dedicated my life to providing them the best possible care, while professionally driving change for all families that are suffering from the profound isolation and grief I continue to overcome every day.

 

I am most proud of challenging the notion that there was nothing that could be done to help my children and others like them with dementia and securing significant funding for research, gaining access to emerging therapy trials and developing global clinical care guidelines. 

 

Skills & Expertise

  • Strategic planning
  • Change management
  • Health systems
  • Scientific research processes
  • Communications

"The Fellowship will allow me to invest in myself to become the bold and confident leader needed to make a profound difference for generations of children with dementia."


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